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罕见病药物氨己烯酸片有效果吗

Author: Medicalhalo
Release time: 2025-10-19 11:44:20

Do rare disease drugs work?

Experimental method: 10 children with TSC and IS who were treated with vigabatrin tablets (vigabatrin) from February 2013 to July 2015 were collected, their treatment conditions were retrospectively analyzed, and their clinical efficacy and adverse reactions were observed. Results The cumulative application time of vigabatrin tablets (vigabatrin) in this group ranged from 1 to 49 months, with a median time of 10 months. After diagnosis, 2 cases were first treated with vigabatrin tablets (vigabatrin), and vigabatrin was added to the remaining two cases after they were not satisfied with other drug treatments. Among them, 8 cases of spasm disappeared or were close to disappearing, 1 case did not improve, and 1 case improved after adding adrenocorticotropic hormone. 6 cases took effect within 1 week, 1 case took effect on 15 days and 60 days respectively, and the average onset of effect was 5 days. The drug was well tolerated in 10 cases and the adverse reactions were mild.

  The trial conclusion shows that vigabatrin tablets (vigabatrin) have a good effect in the treatment of tuberous sclerosis and infantile spasms, with a quick onset of action and good tolerance, and can be used as a first-line treatment drug.

The use of vigabatrin tablets (vigabatrin) should be done under the guidance of an epilepsy expert or a child neurologist. Reactions after taking the medication should be reported to the doctor promptly.

Vigabatrin is an oral medicine that can be taken once or twice a day, before or after meals. It is advisable to drink half a glass of water when taking this medicine for treatment. If your epilepsy does not improve after taking this drug for enough time, you should stop taking vigabatrin. At this time, vigabatrin tablets (Vigabatrin) should be gradually stopped under the supervision of a doctor. Before receiving treatment with vigabatrin, patients should go to the hospital for a detailed examination and strictly take medication according to the doctor's diagnosis and treatment recommendations.  

  The above is the introduction about (vigabatrin), I hope it can help everyone. If patients have other questions about the drug (such as drug price, purchasing channels, etc.), they can consult the medical companion travel service.

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